Better Now

It seems the Dexamethosone (still not sure how you spell this) is out of his system and Killian's feeling much better. There's a teen retreat here at the Children Inn and he's been doing various fun things with teens and twenty-somethings all day. He's bowed out from a couple of activities due to fatigue, but takes a nap here and there and gets right back in the game. He does say he feels the fatigue "in every muscle, even my organs." Now that's tired. Most folks on Yondelis say they feel this way the first week after every treatment and then they start to pick up energy.

We leave the Children's Inn for home Friday morning. YAY! I officially changed the train tickets today. We've met great folks, heard amazing tales of strange coincidences and flukes. Won't tell specifics, but suffice it say when there's billion to one odds of genetic anomallys involved with several people in the room -- the stories are dumbfounding. Brave, brave people here. We probably won't stay at this place much when we return. I suspect we'll check right in the hospital, do the treatment and leave.