Next Steps

Killian has decided to do one of the VEGF trials. He strongly prefers being at NY Columbia Presbyterian hospital, and wishes to wait until that trial (a drug known as VEGF-Trap) opens. We all agreed to wait until Wednesday night and if it doesn't open by then, we'll hop on the opportunity for the other VEGF receptor (VEFG-rz, AKA Cediranib) through NIH. 

I've had a few moms ask why Killian is making these decisions. First, we make sure that he understands the choices, as well as the risks and potential benefits of each choice. Also, it's important to keep in mind that we don't know if any of the drugs we are trying will help. We have hope, no statistics. These options are all too new. If there were a treatment we knew would help, we would insist he do it.  He could, at any point, choose to do no more treatments. Each day I spend hours on the internet, researching, looking for some treatment that Phil and I can justify insisting that Killian undergo. We haven't found that yet. However, I find new trials, new stuff to think about and try almost every week.