Monday, December 1, 2008

Holidaze

We are alternately inching, then sometimes leaping toward difficulties. There are more episodes of various levels of discomfort for Killian, which really brings him down a dark hole. Phil and I try to stay upbeat, because he's only down during the moments he directly experiences discomfort. Almost immediately following these episodes he's playing, making music or art, engaging in conversation. We have to stay upbeat for his bounce-backs. Everyone does. Otherwise we are a village of anchors.

He rallies when folks visit. Don't stay away because you're afraid of saying the wrong thing. What can you say? Play cards, share music -- some kindly folks from Hole in the Wall accidently left a Wii system here and I can't wait to see all my friends do Dance Dance Revolution.  In our home there is no such thing as looking ridiculous. If it's not a good time when you want to visit or call -- we'll tell you.

Our spiritual energies are centered on his good spirits carrying through Christmas.

2 comments:

Anonymous said...

Love from me here in Weehawken to you all there in Wii-Shokan.

Lea Peace said...

: *