Friday, April 10, 2009

14th Street's Not the Same

Killian says something else is going wrong with his arm. Yesterday he had 2 pain crises: one in the middle of 14th Street, where I gave him Roxonol and where Cally cried as much as he did. Throughout the rest of the day, she had as many physical issues as he did—the race was on. And, every incident seemed to be in public (like slamming her finger in the bathroom door at Candle CafĂ©). I understand, it’s her birthday and she should be the focus. I said (when we went to rest up from the drama at the Payless Shoe on 14th St.), “you’re having to deal with some things that no 9-year-old should have to deal with.” Still, it’s her birthday and the week should have been dedicated to her (statues erected too.)

I asked Killian if he thought the pain in his arm is disease. He said he didn’t think so. I asked if he wanted scans before radiation is done. He said he did. I waited a few hours and asked again, “are you sure you want scans before the party for your album?” He said he just wanted to know what’s going on with his arm—only his arm. I’m not even sure Dr. G. would order an xray and then MRI of just his arm. Phil and I have emailed her and we’ll see.

3 comments:

Unknown said...

Happy Birthday, Cally.

Nancy Dawson said...

Thanks for the blog, Barbara.
it helps me feel connected. 14th Street is a lesson in courage for all of us.
love, Nancy

Laura Whisenant said...

Hello
We have been following your blog. My nephew also has synovial sarcoma and is undergoing clincal trials. We would love to correspond with you. You can email my sister at jillrasnick@roadrunner.com. Iknow it would be an encouragement to my sister to be able to share with you.
Thank you and best of luck to you and your son.
~Laura